Paper on glioma-like-lesions in NF1
Physicians often encounter challenges in diagnosing non-optic intraparenchymal lesions on MRI brain scans of patients with neurofibromatosis type 1. Due to unclear incidence and evolution of these lesions into adulthood, we conducted a retrospective study on the subject. Our findings indicated that asymptomatic glioma-like lesions on MRI brain scans of neurofibromatosis type 1 patients, whether […]
Thesis “Innovative designs to improve trials in NF”
On December 18th 2024 Britt Dhaenens defended her thesis Innovative designs to improve trials in NF. NF and SWN predispose to a specific spectrum of associated tumours and other disease manifestations. Given the ineffectiveness of surgery and radiation therapy, there is great need for drug treatments for NF-associated tumours. However, there has been a limited […]
Guidelines
NF guidelines can now be found on this website here. Current guidelines included on this page are:ERN GENTURIS – NF1GIST (ESMO–EURACAN–GENTURIS guideline 2022)Diagnostic criteria on NF1 and Legius (revised 2021)Tumour surveillance in NF1 (ERN GENTURIS guideline 2023) Please contact the webmaster, secretary or chair if you want to place another useful guideline on this website […]