Launch of the ENFG Research Club
We have decided to launch the ENFG Research Club ! It will provide an opportunity to bring together basic and clinical researchers around shared themes in order to: i) exchange perspectives and benefit from each other’s experience; and ii) accelerate potential collaborations. To this end, we propose to hold one session per quarter. Due to the […]
The 2026 European NF Conference – save the date
The 2026 European Neurofibromatosis Conference will take place in Vienna – Austria from 12 to 14 November 2026, at the elegant Hotel Andaz Vienna am Belvedere. Next year’s conference will focus on patient involvement in neurofibromatosis research and care, bringing together leading experts, clinicians, researchers, and patient representatives from across Europe and beyond. Organized in […]
Members list is now online
A list of ENFG members can now be found on this website here. If you are allready on the list, you can ask a private link to modify your personal data here. You can add yourself to the list here. Together we defeat NF Read more ….
Guidelines
NF guidelines can now be found on this website here. Current guidelines included on this page are:ERN GENTURIS – NF1GIST (ESMO–EURACAN–GENTURIS guideline 2022)Diagnostic criteria on NF1 and Legius (revised 2021)Tumour surveillance in NF1 (ERN GENTURIS guideline 2023) Please contact the webmaster, secretary or chair if you want to place another useful guideline on this website […]
Contact details
All ENFG steering committee members including email addresses can now be found on the members part of this website here (behind a password). Please contact the webmaster, secretary or chair if you don’t have the password.