-
Paper on glioma-like-lesions in NF1
Physicians often encounter challenges in diagnosing non-optic intraparenchymal lesions on MRI brain scans of patients with neurofibromatosis type 1. Due to unclear incidence and evolution of these lesions into adulthood, we conducted a retrospective study on the subject. Our findings indicated that asymptomatic glioma-like lesions on MRI brain scans of neurofibromatosis type 1 patients, whether…
-
Thesis “Innovative designs to improve trials in NF”
On December 18th 2024 Britt Dhaenens defended her thesis Innovative designs to improve trials in NF. NF and SWN predispose to a specific spectrum of associated tumours and other disease manifestations. Given the ineffectiveness of surgery and radiation therapy, there is great need for drug treatments for NF-associated tumours. However, there has been a limited…
-
Guidelines
NF guidelines can now be found on this website here. Current guidelines included on this page are:ERN GENTURIS – NF1GIST (ESMO–EURACAN–GENTURIS guideline 2022)Diagnostic criteria on NF1 and Legius (revised 2021)Tumour surveillance in NF1 (ERN GENTURIS guideline 2023) Please contact the webmaster, secretary or chair if you want to place another useful guideline on this website…
-
Contact details
All ENFG steering committee members including email addresses can now be found on the members part of this website here (behind a password). Please contact the webmaster, secretary or chair if you don’t have the password.
-
INFER Masterclasses in NF
INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available…
-
Let us know
Leave a reply below if you: Your reply will not be shown under this news post (although you will see it directly after your reply). If necessary we will reply by email. Please add the ENFG logo to your website if you think we are your partner with the following link: https://enfg.eu
-
ENFG meeting 2024
The people involved and/or interested in the European Neurofibromatosis Group (ENFG) had a meeting at the global NF conference in Brussels at the 23rd of June 2024. Around 50 people attended this meeting under the chairmanship of Rianne Oostenbrink. Brainstorming took place about the future of the ENFG and what the ENFG can mean for…
-
Hello world!
From today the European NF Group (ENFG.EU) website is online. There is currently little content on the website. This will follow over time. Currently you can find information about the ENFG factsheet, ENFG partners and ENFG board (on the password protected members section of this website).Ask Rianne Oostenbrink, Sarah van Dijk or Walter Taal the…
