Dear NF partners,
Could you please share this with your patient networks? If you know patients who may be eligible or interested, we would also greatly appreciate your encouragement for them to participate.
Thank you very much for your support.
Best regards,
Rianne Oostenbrink
NF Academy in Rotterdam 22 – 29 august 2026
Still places open for aAYAs with NF1/NF2/SWN between 18-35 years!
The NF academy aims to educate and train young adults and adolescents to become NF ambassador.
What do we expect of paticipants
· Aged 18 -35 jyears, with NF1, NF2/SWN, of you are a parent or sibling of someone with the condition
· Can understand and express in English at end secondary school level
· Able to orgnanise daily life and to travel indepently and can sustain a week of workshops and activities
· Motivated and open to learn about NF, patient rights, and enjoys to meet new friends among Europe to share experiences
· Motivated to take the role of NF ambassador with the obtained new experiences from the NF academy